Daxton Box

I have created a NEW website for the Daxton Box. Please visit www.daxtonsbox.blogspot.com

Sunday, June 9, 2013

Week in Review

This week has been a fun one.  Early in the week there was a tropical storm that went through Florida.  It missed us but we got a ton of rain because of it.  It has rained a ton every day the past two weeks.  Apparently June is the rainy month here but it's been a long time since many locals we've talked to remember this much rain in consecutive days. 

We started lengthening Savannah's leg on Monday.  We lengthen it 0.25 mm four times a day so by the end of each day it will be 1mm longer......we are now 5mm into the lengthening.  The machine we use to lengthen it is a magnet that spins and this in turn spins the nail in Savannah's leg.  You can see a picture of the PRECICE implant that is in Savannah's leg here: http://www.ellipse-tech.com/pages/PRECICE

Yesterday we went to a science museum.  They has some very cool things like real mummies from B.C. that the Egyptians had preserved.  They also had one of the space suits that astronauts wore during one of the Apollo missions.  They had some really cool fish aquariums.  One of them was circular with a hole in the middle like a Cheerio.  Mikenna took Scarlett into the middle so she could see fish all around her.....we thought she might have sensory overload as she was going crazy watching all of the fish around her.  She thought it was very cool.  

After we got home from the museum Scarlett tripped while going to check the mail.  She hit her head on the corner of a concrete post.  It sliced about a 1.5 inch long gash that was very deep.  Blood was running down her face.  Brittany cleaned it up and we ran her to the same hospital that perfomred Savannah's surgery.  The Drs. were hoping to just glue the wound together but it was too deep so they had to stitch it up.  To get her to hold still they had to wrap her in a sheet and then a papoose, which was basically a board with velcro straps.  She fought the whole time the Dr. stitched her up.  Finally when they finished and we unbundled her she was soaking wet from sweat. Not fun.

Today after church we released balloons to Daxton with notes for him in the balloons.

Thanks for all of your prayers.  We have been so very blessed the past few weeks and we know it is in large part because of the many prayers by our families and friends. 







Thursday, June 6, 2013

First day on our own

IAfter two hours waiting to lengthen yesterday I decided that enough was enough and I had had enough. We were able to bring home the lengthening machine today! Wahoot. Hallelujah! Because I was about to go insane with all of the waiting we were having to do. It was gettin really ridiculous and I was about to lose my mind. 

Today was our first day on our own for lengthening. It's pretty cool. I will need to figure out how to post a video and you can all see. Savannah is being really brave. I'm so proud of her for being so brave and taking it in. Therapy has been really har and really intense for her. We are learning all the moves and exercises that will help her and we get to do them 3-4 times a day... So I figure since we have to lengthen 4 times a day, we may as well do therapy 4 times a day too.

Today has been a little harder than the rest for savannah. It was also a very funny day. We were on tornado watch today bc of the storm going through South Carolina. Luckily all we got was severe rain at random intervals! 

We pulled up into the driveway after going to therapy and Costco and dark clouds hovered over us. I got out of the car to move some garbage cans that were in my way and it started DOWNPOURING on me!!! All I could think of was to put the garbage can (lucky it was the recycle) over my head and stand there. Jannae was cracking up at me (all dry in the car).

I wished Jannae had taken a picture... I wanted to reenact so that I could take a pic but i was already so wet!!!

My nasty blisters from crossfit.

I've started taking a daily picture of her in front of the Paley institute.
This is our lengthening machine. You place it on her leg like so...
A little horseplay with the kids ;).

Tuesday, June 4, 2013

Questions answered

Today was a better day. All the questions answered by the PA in a sit down brings peace to a heart. Savannah had a better day at therapy and on our walk Scarlett ate snails. Awesome.